For years I have been concerned about Cowboy. His fingers turn blue with frightening frequency. He has sores on the tips of his finger that just do not heal. His left hip is really tight. He has complained of leg pain since he could talk and has never been able to keep up with other children his age despite being very active.
We took him to the children’s hospital in February because his hands and feet were swollen and one arm was turning dark purple, almost black. It was nice to be taken seriously and the ER consulted with a pediatric Rheumatologist and ordered a bunch of tests. Cowboy was seen by the Rheumatology clinic within two weeks. After a thorough exam and more blood tests we have answers. Cowboy has one other test to go through before his next appointment. I will post more then.
The good news is that all his organs are functioning really well. The bad news is that I was right. I have been right for years. My goal is to not to focus on what could have been had I been listened to 3 years ago when this all started but to focus on educating myself and Cowboy and helping him.
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